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1.
J Palliat Med ; 25(2): 307-311, 2022 02.
Artigo em Inglês | MEDLINE | ID: mdl-34788574

RESUMO

Background: National Consensus Project for quality palliative care guidelines emphasizes the importance of a comprehensive assessment of all care domains, including physical, psychosocial, and spiritual aspects of care, for seriously ill patients. However, less is known about how real-world practice compares with this guideline. Objective: To describe clinicians' assessment practices and factors influencing their approach. Design: This is a two-part web-based survey of palliative care clinicians from five academic groups in the United States. Results: Nineteen out of 25 invited clinicians (physicians, nurse practitioners, and physician assistants) completed the survey. A majority (62%) reported that, although some elements of assessment were mandatory, their usual practice was to tailor the focus of the consultation. Time limitations and workload received the highest mean scores as reasons for tailored assessment (6.1 on a 0-9 importance scale), followed by beliefs that comprehensive assessment is unnecessary (4.8) and absence of the full interdisciplinary team (4.4). All participants cited symptom acuity, and 91% cited reason for consult as factors influencing a tailored approach. Among domains "always" assessed, physical symptoms were reported most commonly (81%) and spiritual and cultural factors least commonly (24% and 19%, respectively). Although a majority of clinicians reported usually tailoring their consultations, mean importance scores for almost all assessment elements were high (range 3.9-8.8, mean 7.1); however, there was some variation based on reason for consult. Spiritual elements received lower importance scores relative to other elements (5.0 vs. 7.4 mean score for all others). Conclusion: Although clinicians placed high importance on most elements included in comprehensive palliative care, in practice they often tailored their consultations, and the perceived relative importance of domains shifted depending upon the type of consultation.


Assuntos
Profissionais de Enfermagem , Cuidados Paliativos , Humanos , Qualidade da Assistência à Saúde , Encaminhamento e Consulta , Espiritualidade , Inquéritos e Questionários , Estados Unidos
2.
J Palliat Med ; 24(8): 1167-1173, 2021 08.
Artigo em Inglês | MEDLINE | ID: mdl-33351728

RESUMO

Objectives: To characterize clinician experiences of hospice access and scope of services for undocumented immigrants. Background: The 10.5 million undocumented immigrants in the United States are not covered by Medicare's hospice benefit and are at high risk for being uninsured. Limited data are available regarding hospice services for this population. Setting/Subjects: Two hundred ninety-four interdisciplinary palliative care clinicians from across the United States. Measurements: Participants completed a web-based survey regarding hospice access and scope of services for undocumented immigrants in their location. We used simple frequencies to report clinician responses and chi-square analysis to evaluate associations between response and location. We performed rapid qualitative analysis of free-text responses to identify common limitations in scope of services. Results: A majority of clinicians (68%) perceived that access to hospice was limited or unavailable for undocumented immigrants in their location, and among respondents who provided data regarding hospice scope, 38% reported that services provided to undocumented immigrants were limited compared to those provided to other patients. Reports of restricted access and scope varied by region, and those in large metropolitan areas were more likely to report restricted scope of care than those in smaller towns (43% vs. 28%; p = 0.03). In our qualitative analysis of free-text responses, common limitations in hospice scope included reduced access to medications and equipment, inability to access inpatient hospice, inadequate translation services, reduced staffing, and restricted duration of services. Conclusions: Undocumented immigrants may face barriers in accessing comprehensive hospice services. Public policy changes that improve access to hospice may improve end-of-life care for undocumented immigrants.


Assuntos
Emigrantes e Imigrantes , Hospitais para Doentes Terminais , Imigrantes Indocumentados , Idoso , Acessibilidade aos Serviços de Saúde , Humanos , Medicare , Inquéritos e Questionários , Estados Unidos
3.
BMJ ; 370: m3005, 2020 08 20.
Artigo em Inglês | MEDLINE | ID: mdl-32819922
4.
BMJ ; 370: m2630, 2020 07 10.
Artigo em Inglês | MEDLINE | ID: mdl-32651171
6.
7.
AMA J Ethics ; 20(8): E778-779, 2018 08 01.
Artigo em Inglês | MEDLINE | ID: mdl-30118430

RESUMO

In this graphic narrative, a clinician illustrates an experience of caring for an undocumented patient suffering from end-stage renal disease (ESRD). Cruel Carousel tells one of the stories that most profoundly shaped the author's own views on health care for undocumented immigrants. Graphic narrative was chosen to tell this story because words alone couldn't capture the patient's experience or the author's distress about what happened to him.


Assuntos
Emigrantes e Imigrantes/psicologia , Empatia , Romances Gráficos como Assunto , Falência Renal Crônica/mortalidade , Falência Renal Crônica/terapia , Diálise Renal/ética , Diálise Renal/psicologia , Adulto , Evolução Fatal , Humanos , Masculino , México , Estados Unidos
9.
J Palliat Med ; 19(5): 559-65, 2016 05.
Artigo em Inglês | MEDLINE | ID: mdl-27046735

RESUMO

BACKGROUND/OBJECTIVE: The goal of this update in hospice and palliative care is to summarize and critique research published between January 1 and December 31, 2014 that has a high potential for impact on clinical practice. DESIGN: To identify articles we hand searched 22 leading journals, the Cochrane Database of Systematic Reviews, and Fast Article Critical Summaries for Clinicians in Palliative Care. We also performed a PubMed keyword search using the terms "hospice" and "palliative care." MEASUREMENTS: We ranked candidate articles based on study quality, appeal to a breadth of palliative care clinicians, and potential for impact on clinical practice. RESULTS: In this manuscript we have summarized the findings of eight articles with the highest ratings and make recommendations for clinical practice based on the strength of the resulting evidence.


Assuntos
Cuidados Paliativos na Terminalidade da Vida , Cuidados Paliativos , Hospitais para Doentes Terminais
10.
Am J Gastroenterol ; 106(11): 1899-908; quiz 1909, 2011 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-21826111

RESUMO

OBJECTIVES: Endoscopic ablation of Barrett's esophagus can bury metaplastic glands under a layer of neosquamous epithelium. To explore the frequency and importance of buried metaplasia, we have conducted a systematic review of reports on endoscopic ablation. METHODS: We performed computerized and manual searches for articles on the results of photodynamic therapy (PDT) and radiofrequency ablation (RFA) for Barrett's esophagus. We extracted information on the number of patients treated, biopsy protocol, biopsy depth, and frequency of buried metaplasia. RESULTS: We found 9 articles describing 34 patients with neoplasia appearing in buried metaplasia (31 after PDT). We found five articles describing a baseline prevalence of buried metaplasia (before ablation) ranging from 0% to 28%. In 22 reports on PDT for 953 patients, buried metaplasia was found in 135 (14.2%); in 18 reports on RFA for 1,004 patients, buried metaplasia was found in only 9 (0.9%). A major problem limiting the conclusions that can be drawn from these reports is that they do not describe specifically how frequently biopsy specimens contained sufficient subepithelial lamina propria to be informative for buried metaplasia. CONCLUSIONS: Endoscopic ablation can bury metaplastic glands with neoplastic potential but, even without ablation, buried metaplasia often is found in areas where Barrett's epithelium abuts squamous epithelium. Buried metaplasia is reported less frequently after RFA than after PDT. However, available reports do not provide crucial information on the adequacy of biopsy specimens and, therefore, the frequency and importance of buried metaplasia after endoscopic ablation remain unclear.


Assuntos
Adenocarcinoma/patologia , Esôfago de Barrett/tratamento farmacológico , Esôfago de Barrett/cirurgia , Ablação por Cateter/efeitos adversos , Neoplasias Esofágicas/patologia , Fotoquimioterapia/efeitos adversos , Adenocarcinoma/diagnóstico , Esôfago de Barrett/patologia , Neoplasias Esofágicas/diagnóstico , Esofagoscopia , Humanos , Metaplasia
11.
Curr Infect Dis Rep ; 4(4): 293-298, 2002 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-12126605

RESUMO

Nonvalvular intravascular devices are in widespread use in developed countries and are now more commonly employed than are prosthetic cardiac valves. Although the variety of devices that are included in the category of "nonvalvular" represent a heterogenous collection, there is commonality among several of the devices. This includes their requirement to sustain life and the need for removal for cure if they become infected, which is often due to multidrug-resistant microorganisms. Thus, infection of these devices often presents difficult treatment scenarios. This update will address the pathogenesis and immunobiology of nonvalvular intravascular device-related infections and the epidemiology and treatment of infections of several of these devices that include pacemakers, implantable cardioverter defibrillators, intravascular catheters, vascular grafts and stents, and left ventricular assist devices.

12.
Clin Infect Dis ; 34(10): E44-9, 2002 May 15.
Artigo em Inglês | MEDLINE | ID: mdl-11981746

RESUMO

Cutaneous inoculation blastomycosis is a rare illness. We report a case of cutaneous inoculation blastomycosis in a patient who was inoculated after being struck by a projectile while performing yard work. We also review cases of cutaneous inoculation blastomycosis described elsewhere, to improve characterization of the syndrome.


Assuntos
Blastomyces , Blastomicose/microbiologia , Dermatomicoses/microbiologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Antifúngicos/uso terapêutico , Blastomicose/tratamento farmacológico , Dermatomicoses/tratamento farmacológico , Feminino , Humanos , Itraconazol/uso terapêutico , Masculino , Pessoa de Meia-Idade
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